Showing posts with label disabilities. Show all posts
Showing posts with label disabilities. Show all posts

Tuesday, February 1, 2011

A Disability Separates Mother and Children

02.01.2011

I read Sandy Banks’ Op-Ed piece from today and I couldn’t have said it better myself.

Divided by parental love

A 'good father' feuds with his former mother-in-law over visits between his children and their disabled mom. That shouldn't be.

Sandy Banks / February 1, 2011

The court file might be as thick as the Dorn triplets are tall by the time the legal wrangling between their father and grandparents ends.

The children — Yossi, Esti and Reuvi, now 41/2 — are at the center of an acrimonious legal battle over whether they should be allowed, ordered even, to visit their mother, who suffered catastrophic brain damage giving birth to them.


Times reporter Maria La Ganga has chronicled the story of the family: Abbie Dorn was left unable to move or speak by a series of medical errors during childbirth in 2006 at Cedars-Sinai Medical Center. Two years later, she and her husband, Dan, were divorced. Her parents, Paul and Susan Cohen, became her conservators. They moved Abbie to their South Carolina home and enlisted an army of therapists to work with her.

Susan says Abbie has improved dramatically from the "vegetative state" once assigned to her. "She has vision; she can hear, she enjoys her nieces and nephews." It's time for her children to get to know the mother they have seen only once in three years.

Dan Dorn sees it differently. For months after the children were born, he hauled them to her hospital bed.

Those visits stopped, he said, when he became convinced that they would do his children more harm than good.

He is trying to protect his children from the danger of unreal expectations that their mother will one day be able to help them with homework, or even talk with them.

That expectation is embodied by his former mother-in-law, who looks past Abbie's feeding tube, rigid limbs and blank stare and sees her funny, loving middle child — the one she always considered the peacemaker.

This case could use a peacemaker.

The legal question is clear: California's family law provisions support "frequent and continuing contact with both parents" unless that contact is "not in the best interests of the children." It is up to Judge Frederick C. Shaller to decide whether visits with their mother would be detrimental to the triplets.

But the process has been freighted with hostility and hardball tactics, with each side claiming that the other cares less about the children's interests than their own selfish agendas.

"I get a sick feeling about this case," Shaller told both sides during a court hearing I attended last week. "I don't know how it got to the point of being litigated like this when we have three little children to think about."

The lawyers seem to argue over every detail, from the evaluations offered by dueling experts to the conditions for a possible Passover visit.

"Most of what is happening in this case doesn't seem to be focusing on … what would be in the best interest of these children," Judge Shaller told them.

The judge is right, from what I see. This is less a legal battle than a war between two bulldog parents, a father of young triplets and the mother of a disabled woman, trying to trying to protect children who have no voice.

Susan Cohen has made the case a public crusade, putting the best face on her daughter's shortcomings. Abbie has a Facebook page. She stares blankly at the camera in her profile photo, pretty in a red headband and bow.

Her interests are swimming, walking on the beach and yoga, it says. There's a video of her at a Purim celebration, strapped to a wheelchair-like contraption while clapping children dance a circle around her.

"Dan wants to erase her from the world," Susan said, her voice rising in the courthouse hall. "It's as if she never existed."

The one time Dan allowed the children to visit Abbie's home, he had Susan followed around by a bodyguard so she wouldn't say anything to the children. "He doesn't want them to know anything about their mother; doesn't even want them to pray for her."

She pauses, and her voice is softer when she speaks again. "He's a good father. He spends time with them, takes good care of them.... But he's afraid for me to give them hope."

--

It's easy to see why Dan Dorn may be seen as the villain. In letters, blog posts and message boards, strangers have lashed out at his choice to keep a mother from her children.

Dan has refused to talk with reporters, but I approach him in the courthouse hallway. I see a flicker of recognition in his eyes when I tell him that I was also a single parent and raised three children on my own when their father died.

His lawyer raises a hand to stop him, but he seems eager for a sounding board.

"I'm the bad guy in this, I know," he said. "I loved Abbie." But his Abbie is gone. His responsibility now is to his children, and he doesn't want them to court disappointment with dreams of boardwalk excursions and shopping malls.

I think he's hard-headed but not hard-hearted. Still, I'll join the chorus and say he's wrong. I understand a father's urge to protect his children. But I think Dorn underestimates the grip a mother has on her children's souls.

Yossi, Esti and Reuvi won't always be naive children, mollified by the script their suffering father offers: Mommy got sick because the doctor made a mistake. Nothing can be done except to move on.

The triplets will become teenagers, young adults, maybe parents. Getting to know their mother, whatever her limitations, offers lessons in patience, sacrifice and compassion that can shape the grownups they become.

There are gifts for both mother and children that only reconciliation between these two families can provide: the joy — however ephemeral and unmeasured — that Abbie may draw from watching her children grow. And the security her children will draw from the knowledge that Mommy loved them with all she had.


sandy.banks@latimes.com

Copyright © 2011, Los Angeles Times


Sunday, January 2, 2011

Autism and Other Disabilities

01.02.2011

I watched the movie Temple Grandin on HBO that stars Claire Danes whom I absolutely love. She plays the woman Temple Grandin who is an autistic person and overcomes challenges to create a system for slaughterhouses that are more humane for cattle. It’s a wonderful movie, very well done and, obviously, well acted.

The movie often touches upon instances of hardship for Temple growing up, painfully sticking out from the rest, observing and interpreting the word differently. Students made fun of her and some would go out of their way to be mean.

It breaks my heart how cruel we are to each other. I understand that kids may not know any better but in my limited amount of child observation, I think it’s safe to say that if a child goes out of his/her way to be cruel to another child or make fun of them, it stems from something deeper. I would say that the parents aren’t doing their job in steering the child into a more compassionate circle. Of course, each scenario is different and, as I think I’ve mentioned a while ago, I’m not immune from being a part of a crowd that makes fun of someone.

I think it boils down to education. Unfortunately, I’ve worked with children who have some sort of a learning disability and though I’m not equipped to diagnose, there are ways to guess that a child’s learning ability is off. What breaks my heart is when parents refuse to accept that their child has a problem as is often the case in the Lithuanian community with those parents who are immigrants. They believe their child’s inability to learn is a reflection on them so it’s easier to ignore the problem. And any blame is placed on the teacher.

Whatever the situation, being aware of a child’s needs is important and even with the array of knowledge that our society has on the different disabilities I think we could do more. I think parents can do more.

Wednesday, August 25, 2010

Science and Morality

08.25.2010

Two scientists, Dr. James L. Sherley and Theresa Deisher, may win their case against the Department of Health and Human Services because they are morally opposed to stem cell research. It is because of them that there is a current injunction on federal funding for research involving human embryonic stem cells.[1]

What about being morally opposed to scientists creating the atomic bomb that killed thousands of Japanese? Or bombs that kill Iraqi civilians? Or Afghanis?

What about being morally opposed to scientists creating methods to alter cells genetically so that we can engineer an ideal baby?

What about being morally opposed to the hunger of thousands of children already born and living in our own backyard? Or being morally opposed to thousands of children already born who die from neglect and physical abuse at the hands of their supposed caretakers?

My father-in-law has Parkinson’s disease. Stem cell research is one of the biggest hopes we have in finding a cure not just for that disease but also for MS and Huntington’s disease, among others. Is the plan to privatize this research? If so, who's paying for it? We're all going to end up paying for it in some other way; higher health care costs, anyone?

It’s so frustrating to me how much people are willing to fight (and kill) for the possibility of someone else's baby or just for the mere idea of a baby and yet, look away so easily at the death, destruction, and neglect that goes on around us on a daily basis. They may give a voice to the “unborn” but what about those children who already walk, already talk, and already feel? What about those children who already understand from the actions of adults around them that they are not wanted? What about those children…?


[1] Maugh II, Thomas H. “The Pair Behind the Stem Cell Suit,” Los Angeles Times, Wednesday, August 25, 2010, A10 and Kaplan, Karen, “Scientists Rush to Use or Redirect Stem Cell Funds,” Los Angeles, Times, Wednesday, August 25, 2010, A10.

Monday, May 17, 2010

Is It "Just Because?"

05.15.2010

I had a discussion with Rob yesterday about a boy that he knows who is having some trouble at school. The boy is acting out and the parent was surprised to find out that the school wasn’t doing anything about these outbursts. He, I think, has been diagnosed with some disabilities and isn’t receiving the support that he should be receiving. Rob was frustrated to hear that this boy is getting picked on at school and is called names that increases his anger and instigates more outbursts. Having been picked on himself as a kid, Rob didn’t like hearing that the school tried discussing psychological reasons for his outbursts instead of just accepting how difficult it is to be a kid, especially a boy who may stand out from the crowd. Rob kept saying to me that sometimes psychology has nothing to do with it and that it’s merely just about being a kid.

I found myself disagreeing with him and, as usual, felt no hesitancy to express as much. He then told me that he got into fights a lot when he was a kid and that he turned out fine; that the fights had nothing to do with some sort of a psychological meltdown or that it was because of some hidden, deeper meaning. His fights were just about the fact that he was a kid trying to make it in the big, great (kid’s) world.

It’s one thing to find a kid who gets into one fight. Maybe two. But when a kid is getting into repeated fights, I will argue that there’s a deeper meaning. Kids will pick on kids who stand out. Hell, freakin’ adults do that. How many times did I have to listen to my former boss bitch about someone she didn’t consider to be up to her standards? But a kid who constantly disrupts class, gets into fights regardless of repeated steps taken to stop it, or a kid who breaks down emotionally at the slightest discrepancy to the day….I’m sorry, there’s a problem. A psychological problem that needs to be addressed immediately.

We all may have had our moments growing up where we got into fights at school, stole from others (like I did), or were mean ourselves by picking on others and we turned out OK. But I challenge to reflect on those times and what was going on in one's own life at that time that caused the manifestation of such behavior. It’s never because "I just 'felt' like it.” Every action is a reaction to something. This is a constant that leads into our adulthood but something we learn in childhood. Being a kid is never easy no matter where you fit on the spectrum of “normalcy” or “weirdness.”